Thursday, November 02, 2006

Update on Martin Twins

Here is the situation as I heard it last night:

Charli and Ali Martin were successfully delivered by C-section on Wednesday around 1:00pm. Both little girls were breathing on their own. However, because of fluid on brain, Charli was born with a severe case of HPE--she does not have a formed brain or brain stem. The doctors believed on Wednesday that she would only continue to live for a day. Wes and Amanda made the decision not to put her on life support. They believe that if G-d heals her, He would do so completely and she wouldn't need life support. If He chooses not to, they didn't want her to live the rest of her life on life support. They spent last night just holding her, keeping her comfortable, and praying.

Ali was born with Dandy Walker Syndrome, a completely unrelated brain abnormality. The doctors were surprised, as they had never seen two babies have such entirely separate illnesses at one time. Dandy Walker Syndrome is somewhat like Down's Syndrome and can mean a great range of different possibilities of mental impairment. Though Ali could live with this condition, as of last night her vital signs were dropping.


In essence, both twins need major healing. I haven't heard if Charli lived through the night or how Ali is doing. I'll update as soon as I hear more.

Edited for update

I got an email that says, "Both Charli and Ali lived through the night, and even breathed on their own. They were re-evaluated by a team of doctors through the course of the day, and their medical team has said that there is a change of diagnosis for both of them.

Both babies have severe hydrocephalus (water on the brain), that has inhibited them from developing functioning brains. They do both have brain stems, and that is why they are able to breathe, move, and react - all of this activity originates in the brain stem. Right now, without a miracle, the rest of their brains are not formed in a way that can sustain their lives for very long.

Without a miracle, Charli and Ali will only live from a few hours or days to possibly a month. Wes & Amanda's heart is that the girls do not suffer at all, and that Jesus would either fully restore and heal them, or that He would take them quickly and peacefully to Himself."

1 bewildered response(s):

Anonymous said...

last I heard..Charli lived through the night..and Ali is improving..and the doctors are wondering if they misdiagnosed her..or maybe the Lord..? ^_^

~Amy~